Dear DCI Community Members,
We wish you a very Happy New Year!
We are delighted to share the latest developments of the DCI Network with you!
The DCI Network presents its upcoming webinar on January 31st 12-1:30pm EST: The Future of Electronic Medication Label and Patient Communication.
Panelists:
Pharmaceutical Industry View - Dr. Shimon Yoshida, Executive Director, Head of International Labeling Group, Pfizer
Pharmaceutical Industry View - Craig Anderson, Director, Information Management, Pfizer
Patient Advocacy View - Claire Saxton, Vice President, Patient Experience, Cancer Support Community
Patient Advocacy View - Stephanie Walker, Retired Registered Nurse; Member, MBC Alliance Executive Group; Project Lead, BECOME initiative
Moderator:
Dr. Yuri Quintana, Chief, Division of Clinical Informatics, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School
The time to advocate for changes in medication labeling has arrived. As the patient moves to the center of healthcare, medication labels must be designed to meet their needs. The healthcare sector needs to work to deliver an output that the patient can read, understand, and adhere to. Collaborative healthcare efforts are essential to facilitate this process of designing realistic solutions to simplify patient’s lives. It is the collective responsibility of the healthcare and other pivotal sectors within the digital health eco-system to come together to solve this real-world challenge.
This webinar will discuss how we can improve our electronic patient communication, with a focus on medication labels, to improve patient safety. The webinar will bring a health equity lens to discuss the difficulties faced by low literacy and under-served communities that may have problems getting the help they need to understand their medications and take them safely. Join this expert panel to understand the issues, challenges and strategies to improve how we communicate medication information to patients.
You can register for the webinar here: https://www.dcinetwork.org/events/176
Please visit https://www.dcinetwork.org/events to sign up for future webinars and watch the recordings of our recently hosted webinars.
In 2023, we will be focusing on these areas:
Improving Real World Evidence
- New frameworks for accelerating approvals using Real-World Evidence.
- Approaches for rapid collection of data on emerging pathogens and pandemics.
- Strategies to accelerate recruitment into decentralized clinical trials.
- Best data governance models for private and public stakeholders.
- Approaches for validating and certifying AI-based systems.
- New digital standards for medical labels and drug-drug interaction alerts.
Improving Distributed Clinical Trials
- Improving how we recruit under-represented minorities to clinical trials.
- Develop strategies for retaining participants in trials.
- Improve how we collect data from patients remotely and distribute it across sites.
Improving Patient-Engagement
- Identifying the best approach for engaging patients to enhance behavior change in patients.
- Innovative strategies for collecting data from smart homes and remote monitoring.
- Ethics and standards data collection from wearables and social media for research.
- Regulatory policy changes that enable better digital health data sharing across sites and sectors.
Proposed Working Groups for 2023
We will be creating a precision oncology model that will aggregate clinical records, genomic, imaging, patient-reported data, and social determinants of health to support longitudinal life science research and the clinical decision for treating complex cancers requiring combination therapies (Initial pilot with prostate cancer and hard-to-treat leukemia).
Creating an approach to improve recruitment and retention of underrepresented monitories using data-intensive multi-site strategies to evaluate different approaches and serve as a data source for future trials.
Develop a framework for ethical data collection for longitudinal studies for interventions aimed at changing health behavior in patients at risk of chronic diseases (obesity, diabetes, cardiovascular, and mental health).
To request to join one of these working groups, please contact Yuri Quintana, Ph.D. at yquintan@bidmc.harvard.edu.
Explore the other exciting aspects of DCI Network website:
See the latest news headlines, updated daily:
- Leading Clinical Trial Recruitment Strategies Center Around Real-World Data
- Disruptions to the hearing health sector
- Precision medicine: affording the successes of science
- Removing Socioeconomic Barriers and Increasing Diversity in Clinical Trials Would Have a Positive Economic Impact
- Demographic recruitment bias of adults in United States randomized clinical trials by disease categories between 2008 to 2019: a systematic review and meta-analysis
Explore our Library:
Explore our directory of Companies and Non-Profit Organizations in the health care.
Explore other members in our directory that are a part of the DCI Network.
About the DCI Network:
Launched in September 2022, the DCI Network aims to accelerate solutions to complex healthcare problems that require multi-stakeholder collaborations by creating new consortia and roadmaps to fund and implement breakthrough initiatives. The DCI Network brings together top thought leaders and decision-makers from the private sector, government, non-profits, and academia to discuss the most complex problems that require multi-stakeholder collaboration. Join the DCI Network to stay current on emerging trends and join the discussion with thought leaders: https://www.dcinetwork.org/user/register.
To learn more, visit https://www.dcinetwork.org/about-us.
Yuri Quintana, Ph.D. (He/Him/His)
Chief, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
Assistant Professor of Medicine, Harvard Medical School
