Panel 1: Patient Perspectives

• Living a Full Life: Managing chronic conditions in a family of five 
  • Elizabeth "Betsy" Lowe, Patient & Family Advisor, Beth Israel Deaconess Medical Center; Patient Advisor, Open Notes; DCI Network Working Group 2 Steering Committee
• Self-Advocating While Seeking a Medical Balance Quality of Life
  • Glenda Thomas, Advisory Council: Beth Israel Deaconess Medical Patient, Family, and Caregiver Advisory Council (PFAC), Massachusetts Rare Disease Advisory Council, UCB Myasthenia Gravis Patient Advisory Council, Alexion MG Patient Registry Advisory Board, Argenx MG Advocacy Leadership Council; New England MG Support Group Leader, Myasthenia Gravis (MG) Foundation of America; DCI Network Working Group 2 Steering Committee; Founder and CEO, nCeptive-Daily Money Manager (DMM)
• From Subjects to Partners: The Evolution of Patient Roles in Health Research & Innovation
  • Liz Salmi, Patient Initiatives Director, OpenNotes, Beth Israel Deaconess Medical Center

Q&A with audience moderated by Dr. Daniel Sands, MD, MPH, Co-founder and Chief Advocacy Officer, Society for Participatory Medicine; Chief Medical Officer, WKD.SMRT; Assistant Professor of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School