Welcome Remarks:

Dr. Yuri Quintana, PhD, Chief, Division of Clinical Informatics, Department of Medicine, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School

The Future of Patient Engagement: Informed Patients Sharing the Work

"e-Patient Dave" deBronkart, Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup

For far too long, patients have been relegated to the role of "humble supplicants," as BMJ editor Dr. Tessa Richards brilliantly stated. She was excluded from participating in the tumor board's discussions about treatments for her own cancer. In the past, "patient engagement" often amounted to simply persuading patients to unquestionably follow medical guidance within a paternalistic system, assuming that patients were incapable of handling the truth and would not know how to make decisions about their own care. But the times have changed. This keynote will call us to learn to listen to patients' voices and work with them as thinking co-producers. The key lesson to remember is that the future is unfolding before us, whether we acknowledge it or not.

Panel 1: Patient Perspectives

Living a Full Life: Managing chronic conditions in a family of five 

Elizabeth "Betsy" Lowe, Patient & Family Advisor, Beth Israel Deaconess Medical Center; Patient Advisor, Open Notes; DCI Network Working Group 2 Steering Committee

Panel 1: Patient Perspectives

Self-Advocating While Seeking a Medical Balance Quality of Life

Glenda Thomas, Advisory Council: Beth Israel Deaconess Medical Patient, Family, and Caregiver Advisory Council (PFAC), Massachusetts Rare Disease Advisory Council, UCB Myasthenia Gravis Patient Advisory Council, Alexion MG Patient Registry Advisory Board, Argenx MG Advocacy Leadership Council; New England MG Support Group Leader, Myasthenia Gravis (MG) Foundation of America; DCI Network Working Group 2 Steering Committee; Founder and CEO, nCeptive-Daily Money Manager (DMM)

Panel 1: Patient Perspectives

From Subjects to Partners: The Evolution of Patient Roles in Health Research & Innovation

Liz Salmi, Patient Initiatives Director, OpenNotes, Beth Israel Deaconess Medical Center

Keynote 2: Making Trust So Strong It Goes Unnoticed

Dr. Alex Jadad, MD DPhil LLD FCAHS, Founder, Centre for Digital Therapeutics; Research Professor (Adjunct), Keck Medical School, University of Southern California; Principal, Vivenxia Healthcare

Keynote 3: The Other 50%: Navigating Preventative Cancer Screening For People Without A Primary Care Physician

Dr. Eric Perakslis, PhD, Chief Scientific and Data Officer, Pluto Health; Senior Vice President and Chief Technology Officer, IMIDomics

Approximately half of Americans lack a dedicated primary care doctor resulting in significant gaps in preventative and primary care for these populations. While it is well known that the many cancers are managed well if caught early, the incidence of people that have never had a mammogram, colonoscopy or lung cancer screening is highest in the most vulnerable subsets of our citizens. Despite the promise of digital health solutions to aid these populations, most digital-centric approaches have failed. In this talk, we will discuss hybrid ‘click-and-mortar’ approaches to preventative cancer care currently being piloted and will discuss the potential benefits and risks of hybrid digital preventative care.

Panel 2: Innovative Healthcare Delivery

Using Concepts from Behavioral Economics to Drive Patient Engagement and Behavior Change

Dr. Alexander Fanaroff, MD, MHS, Assistant Professor of Medicine, Division of Cardiology, University of Pennsylvania

Panel 2: Innovative Healthcare Delivery

Bridging the Gaps: Leveraging AI to Ensure Continuity of Care from Hospital to Home

Dr. Amy Price, DPhil, Senior Research Scientist, Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine, Dartmouth College; BMJ Research Editor (Patient and Public Partnership)

Panel 2: Innovative Healthcare Delivery

How Patient Advocacy Organizations Can Facilitate Systems Design, Implementation, and Adoption to Improve Patient Outcomes

Dr. Jerome Jourquin, PhD, Senior Director, Data Science, Susan G. Komen Foundation

Panel 3: Future of Chatbots and Ambient AI

Designing and Testing an Evidence-Based Mental Health Chatbot using Generative Artificial Intelligence

Dr. Nicholas C. Jacobson, PhD, Assistant Professor, Biomedical Data Science and Psychiatry, Center for Technology and Behavioral Health, Geisel School of Medicine, Dartmouth College

Panel 3: Future of Chatbots and Ambient AI

Deployment of GPT4 for Open Operational and Research Use in a Cancer Center

Dr. Jason M. Johnson, PhD, Chief Data and Analytics Officer, Dana-Farber Cancer Institute

Panel 3: Future of Chatbots and Ambient AI

(Re)Imagining Healthcare: From Chatbots to AI, the Future is Now

Kiran Dattani, MBA, MPH, Architecture & Cloud Enablement Specialist, Google Cloud Healthcare and Life Sciences

Panel 4: Future Approaches to Patient Engagement and Medication Information Access

FHIR based medication labels and HL7 Hackathons

Craig Anderson, Director, R&D Lead, International Labeling Group, Pfizer

Panel 4: Future Approaches to Patient Engagement and Medication Information Access

FDA Digital Initiatives for Medication Information

Dr. Gideon Scott Gordon, PhD, Senior Health Informatics Officer, Office of Strategic Programs, Center for Drug Evaluation and Research, U.S. Food and Drug Administration

Closing Remarks

Dr. David Avigan, MD, Director, Cancer Center, Beth Israel Deaconess Medical Center; Senior Vice President, Cancer Services, Beth Israel Lahey Health

Closing Remarks

Dr. Edith M. Eby, PharmD, Vice President, Worldwide Medical & Safety, Chief Medical Office, Pfizer

Closing Remarks

Dr. Yuri Quintana, PhD - Next Steps for DCI Network