- Published: 27 June 2024
- Posted: 08 July 2024
Welcome Remarks:
Dr. Yuri Quintana, PhD, Chief, Division of Clinical Informatics, Department of Medicine, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School
Welcome Remarks:
Dr. Yuri Quintana, PhD, Chief, Division of Clinical Informatics, Department of Medicine, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School
The Future of Patient Engagement: Informed Patients Sharing the Work
"e-Patient Dave" deBronkart, Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup
Panel 1: Patient Perspectives
Living a Full Life: Managing chronic conditions in a family of five
Elizabeth "Betsy" Lowe, Patient & Family Advisor, Beth Israel Deaconess Medical Center; Patient Advisor, Open Notes; DCI Network Working Group 2 Steering Committee
Panel 1: Patient Perspectives
Self-Advocating While Seeking a Medical Balance Quality of Life
Panel 1: Patient Perspectives
From Subjects to Partners: The Evolution of Patient Roles in Health Research & Innovation
Liz Salmi, Patient Initiatives Director, OpenNotes, Beth Israel Deaconess Medical Center
Keynote 2: Making Trust So Strong It Goes Unnoticed
Dr. Alex Jadad, MD DPhil LLD FCAHS, Founder, Centre for Digital Therapeutics; Research Professor (Adjunct), Keck Medical School, University of Southern California; Principal, Vivenxia Healthcare
Panel 2: Innovative Healthcare Delivery
Using Concepts from Behavioral Economics to Drive Patient Engagement and Behavior Change
Dr. Alexander Fanaroff, MD, MHS, Assistant Professor of Medicine, Division of Cardiology, University of Pennsylvania
Panel 2: Innovative Healthcare Delivery
Bridging the Gaps: Leveraging AI to Ensure Continuity of Care from Hospital to Home
Dr. Amy Price, DPhil, Senior Research Scientist, Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine, Dartmouth College; BMJ Research Editor (Patient and Public Partnership)
Panel 2: Innovative Healthcare Delivery
How Patient Advocacy Organizations Can Facilitate Systems Design, Implementation, and Adoption to Improve Patient Outcomes
Dr. Jerome Jourquin, PhD, Senior Director, Data Science, Susan G. Komen Foundation
Panel 3: Future of Chatbots and Ambient AI
Designing and Testing an Evidence-Based Mental Health Chatbot using Generative Artificial Intelligence
Dr. Nicholas C. Jacobson, PhD, Assistant Professor, Biomedical Data Science and Psychiatry, Center for Technology and Behavioral Health, Geisel School of Medicine, Dartmouth College
Panel 3: Future of Chatbots and Ambient AI
Deployment of GPT4 for Open Operational and Research Use in a Cancer Center
Dr. Jason M. Johnson, PhD, Chief Data and Analytics Officer, Dana-Farber Cancer Institute
Panel 3: Future of Chatbots and Ambient AI
(Re)Imagining Healthcare: From Chatbots to AI, the Future is Now
Kiran Dattani, MBA, MPH, Architecture & Cloud Enablement Specialist, Google Cloud Healthcare and Life Sciences
Panel 4: Future Approaches to Patient Engagement and Medication Information Access
FHIR based medication labels and HL7 Hackathons
Craig Anderson, Director, R&D Lead, International Labeling Group, Pfizer
Panel 4: Future Approaches to Patient Engagement and Medication Information Access
FDA Digital Initiatives for Medication Information
Dr. Gideon Scott Gordon, PhD, Senior Health Informatics Officer, Office of Strategic Programs, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Closing Remarks
Dr. David Avigan, MD, Director, Cancer Center, Beth Israel Deaconess Medical Center; Senior Vice President, Cancer Services, Beth Israel Lahey Health
Closing Remarks
Dr. Edith M. Eby, PharmD, Vice President, Worldwide Medical & Safety, Chief Medical Office, Pfizer
Closing Remarks
Dr. Yuri Quintana, PhD - Next Steps for DCI Network
Keynote 3: The Other 50%: Navigating Preventative Cancer Screening For People Without A Primary Care Physician
Dr. Eric Perakslis, PhD, Chief Scientific and Data Officer, Pluto Health; Senior Vice President and Chief Technology Officer, IMIDomics
The time to advocate for changes in medication labeling has arrived. As the patient moves to the center of healthcare, medication labels must be designed to meet their needs. The healthcare sector needs to work to deliver an output that the patient can read, understand, and adhere to. Collaborative healthcare efforts are essential to facilitate this process of designing realistic solutions to simplify patient’s lives.
The time to advocate for changes in medication labeling has arrived. As the patient moves to the center of healthcare, medication labels must be designed to meet their needs. The healthcare sector needs to work to deliver an output that the patient can read, understand, and adhere to. Collaborative healthcare efforts are essential to facilitate this process of designing realistic solutions to simplify patient’s lives.
April 1, 2019, Medical Device Innovation Consortium (MDIC)
MDIC surveyed 53 device and diagnostic industry stakeholders and separately surveyed 123 individuals identifying as patients. The goal of the complementary surveys was to inform future work to develop guidelines for industry on how to involve patients in the design of clinical trials.
Within our survey response populations, we discovered: