About Event
The DCI Network is excited to present a series of events focusing on the transformative potential of AI and emerging technologies in enhancing patient engagement, education, and outcomes. Join us for a one-day course, a conference, and a retreat, where you'll have the opportunity to learn from experts, share insights, and collaborate with colleagues from diverse backgrounds to shape the future of patient-centric care.
- Event 1: Leveraging AI for Patient Engagement, Education, and Outcomes in Pharma and Healthcare
- A One-Day Course | Boston, MA | June 26, 2024
- Event 2: The Future of Patient Engagement: Insights, Innovations, and Implementations
- A DCI Network Conference | Harvard University | June 27, 2024
- Event 3: DCI Network Retreat Patient Engagement: Co-Designing the Next Generation of Interactive Medication Apps
- A DCI Network Retreat (Members only) | Harvard University | June 28, 2024
Objectives
- Provide a forum for patients and patient advocates to share their perspectives on the use of emerging technologies in healthcare and offer insights into how these technologies can best meet their needs and preferences.
- Explore the latest advancements in AI, machine learning, virtual reality, and other emerging technologies, showcasing successful case studies and best practices in leveraging these technologies to personalize patient engagement, improve patient education, support shared decision-making, and drive positive health behaviors and outcomes.
- Foster collaboration, knowledge-sharing, and networking among healthcare providers, pharmaceutical industry professionals, technology experts, patients, and patient advocates to develop innovative, patient-centric solutions and advance research and development in the field of patient engagement and emerging technologies.
- Discuss strategies for addressing challenges like trust, privacy concerns, health equity, regulatory compliance, ethical implications of integrating AI and other emerging technologies into patient engagement initiatives, and the policy and regulatory landscape.
Conference Chair
Dr. Yuri Quintana is the chief of the Division of Clinical Informatics at Beth Israel Deaconess Medical Center, an Assistant Professor of Medicine at Harvard Medical School, and the Founder of the DCI Network.
Conference Secretariat: Gyana Srivastava, Research Assistant II, Division of Clinical Informatics at Beth Israel Deaconess Medical Center
Keynotes
- Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup
Cancer survivor Dave deBronkart, known as "e-Patient Dave," is a long-time passionate advocate for the patient’s view of healthcare and empowering patients, through both technology and changing the culture of care. A data geek before cancer, he was thrust into the headlines when he discovered garbage in his medical records, then learned he couldn’t readily review it all. Advocating in Washington for policy changes to fix that, he became known for the rallying cry “Gimme my DaM data” (data about me) and is a global keynote speaker for patient rights. He is a co-founder of the Society for Participatory Medicine, was the Mayo Clinic’s 2015 Visiting Professor in Internal Medicine, and is today avidly exploring how empowered patients are using AI in the work of getting the best possible care for their families.
- Chief Scientific and Data Officer, Pluto Health
- Senior Vice President and Chief Technology Officer, IMIDomics
Eric Perakslis, PhD, is the Chief Scientific and Data Officer of Pluto Health and the Senior Vice President and Chief Technology Officer, IMIDomics. Prior to this, he was the Chief Science and Digital Officer at the Duke Clinical Research Institute. He was previously a Rubenstein Fellow at Duke University, where his work focused on collaborative efforts in data science that spanned medicine, policy, engineering, computer science, information technology, and security. Immediately prior to his arrival at Duke, Eric served as Chief Scientific Advisor at Datavant, Lecturer in the Department of Biomedical Informatics at Harvard Medical School, and Strategic Innovation Advisor to Médecins Sans Frontières.
Eric was Senior Vice President and Head of the Takeda R&D Data Science Institute, where he built an integrated institute of more than 165 multi-disciplinary data scientists serving all aspects of biopharmaceutical R&D and digital health. Prior to Takeda, Eric was the Executive Director of the Center for Biomedical Informatics and the Countway Library of Medicine, an Instructor in Pediatrics at Harvard Medical School, and a faculty member of the Children's Hospital Informatics Program at Boston Children' Hospital.
During his time at HMS, Eric focused on the approval of the Department of Biomedical Informatics as a full academic department, the development of the NIH Undiagnosed Diseases Network, industry collaborations, leading the technology efforts for multiple Ebola response programs, and building active research programs in medical product development, regulatory science, and cybersecurity.
Prior to HMS, Eric served as Chief Information Officer and Chief Scientist (Informatics) at the U.S. Food and Drug Administration. In this role, Eric authored the first IT Strategic Plan for FDA and was responsible for modernizing and enhancing the IT capabilities as well as in silico scientific capabilities at FDA.
Prior to his time at FDA, Eric was Senior Vice President of R&D Information Technology at Johnson & Johnson Pharmaceuticals R&D and member of the Corporate Office of Science and Technology. While at J&J, Eric created and open-sourced the tranSMART clinical data system, which is now being freely used by hundreds of healthcare organizations. During his 13 years at J&J, Eric also held the posts of VP R&D Informatics, VP and Chief Information Officer, Director of Research Information Technology, and Director of Drug Discovery Research. Prior to working at J&J, Eric was the Group leader of Scientific Computing at ArQule Inc.
Eric has served on the editorial board of Cancer Today magazine and as the Associate Editor for Novel Communications for the Journal of Therapeutic Innovation and Regulatory Science. Eric has also served on Science and Technology Advisory Committees and in leadership roles for the American Society of Clinical Oncology, NuMedii, Precision for Medicine, the Survivor Advisory Board at the Cancer Institute of New Jersey, the Kidney Cancer Association, OneMind4Research, and the Scientist - Survivor program of the American Association for Cancer Research. Internationally, Eric has served as the Chief Information Officer of the King Hussein Institute for Biotechnology and Cancer in Amman, Jordan.
Eric has a PhD in chemical and biochemical engineering from Drexel University. He also holds BSChE and MS degrees in chemical engineering.
Alex Jadad is a physician, innovator, and philosopher who has revolutionized health and medicine through his pioneering work on networks of trust, eHealth and evidence-based strategies. For over 30 years his efforts have been focused on developing "high-tech and high-touch" approaches that leverage clinical research, public engagement and cutting-edge technologies like AI, alongside policy makers, heads of state, academics and leaders in the private sector. As a result he has shaped national healthcare systems, health policies and regulatory landscapes around the world.
He holds a Doctor of Philosophy degree from University of Oxford (UK), and has honorary doctorates in Arts and in Laws. He is the founder of the Centre for Digital Therapeutics in Toronto, a simulator of the future. He is the author of 12 books and hundreds of scientific publications, and the creator of the Jadad Scale, the most widely used tool to assess clinical trial quality, worldwide.
Pre-Conference Course
Leveraging AI for Patient Engagement, Education, and Outcomes in Pharma and Healthcare
One-Day Course | Boston, MA | June 26, 2024
This one-day course is designed for pharmaceutical industry professionals and hospital leaders involved in patient engagement, clinical trial recruitment, patient education, and patient-centric care delivery. Participants will learn how AI can be strategically leveraged to improve patient engagement, education, and support while addressing key challenges. The course covers personalized patient engagement strategies, AI-driven insights, ethical AI implementation, and regulatory compliance.
Who Should Attend: Patient Engagement Managers, Clinical Trial Recruitment Specialists, Patient Education Directors, Digital Health Strategists, Chief Innovation Officers, Healthcare Data Scientists, Patient Experience Managers, Healthcare AI Researchers, Population Health Managers, Digital Health Consultants
Session Topics:
- Introduction to AI in Patient Engagement and Education
- Personalized Patient Engagement and Education with AI
- AI-Driven Insights for Patient-Centric Clinical Trials and Care Delivery
- Ethical AI Implementation and Regulatory Compliance
- Collaborative Workshops and Future Directions
See the full course program
DCI Network Conference
The Future of Patient Engagement: Insights, Innovations, and Implementations
DCI Network Conference
Harvard University | June 27, 2024
This conference brings together patients, patient advocates, pharmaceutical industry professionals, hospital leaders, and technology experts to explore how emerging technologies can be strategically leveraged to enhance patient engagement, education, and support. Participants will learn about the latest advancements, showcase successful case studies, and discuss strategies for addressing trust, privacy, health equity, and regulatory compliance challenges.
Who Should Attend: Patients and Patient Advocates, Chief Patient Experience Officers, Patient Engagement Specialists, Digital Health Strategists, AI and Machine Learning Experts in Healthcare, Clinical Trial Managers and Coordinators, Physicians and Nurses, Healthcare Researchers, Medical Affairs Professionals, Health IT and EHR Vendors, Behavioral Economists and Social Scientists, Policymakers and Regulatory Authorities
Session Topics:
- Patient Perspectives on Engagement and Emerging Technologies
- Healthcare Provider Perspectives on Engagement and Emerging Technologies
- Life Sciences Perspectives on Patient Engagement and Emerging Technologies
- Policy, Regulatory, and Ethical Considerations for Patient Engagement and Emerging Technologies
- The Impact of AI and Emerging Technologies on Patient Engagement and Healthcare Delivery
- Innovative Approaches to Patient Engagement using AI, Social Media, and Virtual Reality
See the full conference program and videos from the conference can be viewed here.
Post-Conference Retreat
DCI Network Retreat Patient Engagement: Co-Designing the Next Generation of Interaction Medication Apps
DCI Network Retreat | Harvard University | June 28, 2024
By Invitation Only
This one-day retreat will bring together DCI network members, invited patients, patient advocates, technology innovators, and patient engagement specialists to co-design the next generation of interactive medication apps. Attendees will participate in brainstorming sessions to develop innovative engagement strategies for a new AI chatbot, evaluate the chatbot's performance and safety, and collaborate on creating cutting-edge patient engagement solutions.
Who Should Attend: DCI network members, Invited patients and patient advocates, Invited technology innovators, Invited Patient engagement specialists
Session Topics:
- Brainstorming Session 1: Engagement Strategies for a New AI Chatbot - Hearing the Patient Voices
- Brainstorming Session 2: Engagement Strategies for a New AI Chatbot - Digital Strategies
- Evaluation of the Chatbot: Protocol, Key Performance Metrics, and AI Safety
- Next Steps and Closing Remarks
See the full retreat program.
Key takeaways for participants
- Hearing the Patient Voice and Their Requirements
- Increased Knowledge of Technologies for patient engagement and how they interact with behavior change
- Networking with Diverse Thought Leaders
- Understanding the Regulatory Landscape
- Identifying the Most Innovative and Engaging Approaches to Support Patients
Frequently Asked Questions (FAQ)
- There are no costs to attend online.
- There is a cost to attend in person. Register here. Spaces are very limited. We recommend interested attendees register early.
- Breakfast and lunch will be provided at the event.
- Each person needs to cover their own travel.
- Some sessions will be recorded and available after the event. These videos can be viewed on this page.
- Please email Gyana Srivastava at gsrivast@bidmc.harvard.edu.
Hotels
These hotels have discounted rates for this conference.
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Porter Square Hotel, 1924 Massachusetts Ave, Cambridge, MA 02140
- All reservations must be made by phone 1-888-229-1615 at the front desk of the hotel. Guests wishing to receive the benefits of this group must reference DCI624 or Div Of Clinical Informatics At BIDMC upon booking. Rates are guaranteed until 06/25/2024 or until the block is full. Guaranteed rate is Petite Double Twin: $225 + tax - Petite Queen: $235 + tax - Deluxe Double Twin: $239 + tax - Deluxe Queen: $249 + tax - Queen Suite: $265 + tax)
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Courtyard by Marriott Boston Cambridge: 777 Memorial Drive, Cambridge, Massachusetts, USA, 02139
- Reservations can also be made by calling phone: (617) 492-7777
The following are near Harvard University. Please note that we have not reserved any block of rooms at these hotels.
- Hotel Veritas: 1 Remington St, Cambridge, MA 02138
- Charles Hotel: 1 Bennett St, Cambridge, MA 02138
- Sheraton Commander Hotel: 16 Garden St, Cambridge, MA 02138
- Hyatt Regency Boston / Cambridge: 575 Memorial Dr., Cambridge, Massachusetts, United States, 02139
- Irving House at Harvard: 24 Irving St, Cambridge, MA 02138
Nearby with short uber ride
- Holiday Inn Boston Bunker Hill Area, an IHG Hotel
- Hyatt Regency Boston / Cambridge
- Courtyard by Marriott Boston Cambridge
Lower priced - longer uber drive
Parking
Parking choices near Harvard Faculty Club at 20 Quincy St, Cambridge, MA 02138
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Broadway Garage
Available to be reserved through the Harvard Parking Reservation website.
Program Committee
The conference was organized under the guidance of our esteemed Program Committee. The names are presented in alphabetical order.
- Paul Barr, PhD, MS, Associate Professor, Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College
- Dave deBronkart "e-Patient Dave", Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup
- Eileen Koski, MPhil, FAMIA, Program Director, Health Data & Insights, IBM Research
- Steven "Steve" Labkoff, MD, FACP, FACMI, FAMIA, Collaborating Scientist, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
- Elizabeth "Betsy" Lowe, BIDMC Patient and Family Advisory Council
- Amy Price, DPhil, Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College; BMJ Research Editor (Patient and Public Partnership)
- Yuri Quintana, PhD, Chief, Division of Clinical Informatics, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School; Senior Scientist, Homewood Research Institute
- Leon Rozenblit, JD, PhD, Executive Director, QED Institute; Collaborating Scientist, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
- Gyana Srivastava, Research Assistant II, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
- Glenda Thomas, BIDMC Patient and Family Advisory Council
Collaborating Organizations
The Society for Participatory Medicine is a 501(c)(3) not-for-profit organization devoted to promoting the practice of participatory medicine, which enables collaborative communication and information sharing among patients, caregivers, and healthcare professionals.
Our Guiding Principles:
- To guide patients and caregivers to be actively engaged in their health and health care experiences.
- To guide health professional practices where patient experience and contribution is an integral goal of excellence.
- To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care.
The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.
Sponsorship
Diamond Sponsor 30K
- Logo and thanks on communications to participants
- Logo with link on website
- Logo on all materials at the conference
- Acknowledgement from the podium at opening reception and closing remarks
- "Named" lunch with large logo on screen, plus option to give remarks
- Booth space onsite in a prominent position
- Complimentary conference registration for up to 6 individuals
Platinum Sponsor 20K
- Logo and thanks on communications to participants
- Logo with link on website
- Logo on all materials at the conference
- Acknowledgement from the podium at opening reception
- Booth space onsite
- Complimentary conference registration for up to 5 individuals
Gold Sponsor 10K
- Logo and thanks on communications to participants
- Logo with link on website
- Logo on all materials at the conference
- Booth space onsite
- Complimentary conference registration for up to 4 individuals
Silver Sponsor 5K
- Logo and thanks on communications to participants
- Logo with link on website
- Logo on all materials at the conference
- Complimentary conference registration for up to 2 individual
Bronze Sponsor 1K
- Logo at breakfast table
- Logo on conference program
- Complimentary conference registration for up to 1 individual
For more information about the conference and to become a sponsor, please contact DCI: Yuri Quintana, Ph.D., Chief of Division of Clinical Informatics, Beth Israel Deaconess Medical Center (BIDMC) and Assistant Professor of Medicine at Harvard Medical School (yquintan@bidmc.harvard.edu) and Gyana Srivastava, Research Assistant II, BIDMC (gsrivast@bidmc.harvard.edu).
Host Organization
The Division of Clinical Informatics (https://research.bidmc.org/dci) at Beth Israel Deaconess Medical Center (BIDMC) is a leading center for scalable informatics research and policymaking. The DCI Network (https://www.dcinetwork.org) accelerates solutions to complex healthcare problems through multi-stakeholder alliances and strategic roadmaps, focusing on harmonizing data, improving patient engagement, and building trust in AI.
Who would benefit
- Patients and Patient Advocates
- Patients with chronic conditions
- Patients participating in clinical trials
- Patient advocacy group representatives
- Patient support group leaders
- Patient experience experts
- Pharmaceutical Industry Professionals
- Patient Engagement Managers
- Clinical Trial Recruitment Specialists
- Patient Education Directors
- Medical Affairs Professionals
- Digital Health Strategists
- Clinical Operations Managers
- Pharmacovigilance Specialists
- Medical Science Liaisons
- Market Access and Reimbursement Professionals
- Regulatory Affairs Specialists
- Hospital and Healthcare Leaders
- Chief Patient Experience Officers
- Patient Engagement Specialists
- Physicians (Primary Care, Specialists)
- Nurses (Registered Nurses, Nurse Practitioners, Clinical Nurse Specialists)
- Population Health Managers
- Care Coordinators and Case Managers
- Quality Improvement Professionals
- Healthcare Administrators
- Chief Medical Officers and Chief Nursing Officers
- Telehealth and Remote Monitoring Specialists
- Technology Experts
- Digital Health Strategists
- AI and Machine Learning Experts in Healthcare
- Health IT and EHR Vendors
- Experts in Social Media and Virtual Reality
- Mobile Health App Developers
- Data Scientists and Analysts
- Cybersecurity and Privacy Specialists
- Interoperability and Standards Experts
- Natural Language Processing (NLP) Specialists
- Robotics and Automation Experts
- Researchers and Academics
- Healthcare Researchers
- Behavioral Economists and Social Scientists
- Healthcare AI Researchers
- Biostatisticians and Epidemiologists
- Health Informatics Professionals
- Medical Ethicists
- Health Policy Researchers
- Outcomes Research Specialists
- Social Determinants of Health Experts
- Patient-Reported Outcomes (PRO) Researchers
- Policymakers and Regulatory Authorities
- FDA Representatives
- Health Policy Experts
- Regulatory Affairs Professionals
- Government Agency Representatives (HHS, CMS, NIH)
- Public Health Officials
- Health Insurance Executives and Policymakers
- Value-Based Care Specialists
- Consultants and Innovators
- Digital Health Consultants
- Patient Experience Designers
- Healthcare Innovation Leaders
- Design Thinking Experts
- User Experience (UX) Researchers
- Service Design Professionals
- Change Management Consultants
- Strategy and Business Development Professionals
- Investors and Venture Capitalists in Digital Health
- Other Relevant Professionals
- Medical Device Manufacturers
- Pharmaceutical Supply Chain Managers
- Health Economists and Outcomes Researchers
- Patient Safety Experts
- Risk Management Professionals
- Quality Assurance and Compliance Officers
- Clinical Documentation Improvement Specialists
- Medical Writers and Communicators
- Healthcare Journalists and Media Professionals
