About Event

The DCI Network is excited to present a series of events focusing on the transformative potential of AI and emerging technologies in enhancing patient engagement, education, and outcomes. Join us for a one-day course, a conference, and a retreat, where you'll have the opportunity to learn from experts, share insights, and collaborate with colleagues from diverse backgrounds to shape the future of patient-centric care.

  • Event 1: Leveraging AI for Patient Engagement, Education, and Outcomes in Pharma and Healthcare
    • A One-Day Course | Boston, MA | June 26, 2024
  • Event 2: The Future of Patient Engagement: Insights, Innovations, and Implementations
    • A DCI Network Conference | Harvard University | June 27, 2024
  • Event 3: DCI Network Retreat Patient Engagement: Co-Designing the Next Generation of Interactive Medication Apps
    • A DCI Network Retreat (Members only) | Harvard University | June 28, 2024

Objectives

  • Provide a forum for patients and patient advocates to share their perspectives on the use of emerging technologies in healthcare and offer insights into how these technologies can best meet their needs and preferences.
  • Explore the latest advancements in AI, machine learning, virtual reality, and other emerging technologies, showcasing successful case studies and best practices in leveraging these technologies to personalize patient engagement, improve patient education, support shared decision-making, and drive positive health behaviors and outcomes.
  • Foster collaboration, knowledge-sharing, and networking among healthcare providers, pharmaceutical industry professionals, technology experts, patients, and patient advocates to develop innovative, patient-centric solutions and advance research and development in the field of patient engagement and emerging technologies.
  • Discuss strategies for addressing challenges like trust, privacy concerns, health equity, regulatory compliance, ethical implications of integrating AI and other emerging technologies into patient engagement initiatives, and the policy and regulatory landscape.

Target Audience

  • Patient Engagement Managers
    • Responsible for developing and implementing patient engagement strategies and programs.
    • Keen to learn how AI can help personalize and optimize patient engagement initiatives.
  • Clinical Trial Recruitment Specialists
    • Focused on identifying and recruiting patients for clinical trials
    • Interested in leveraging AI to improve patient recruitment and retention strategies.
  • Patient Education Directors
    • Tasked with creating and delivering effective patient education programs
    • Looking to explore AI-driven personalization and content creation for patient education
  • Digital Health Strategists
    • Responsible for driving digital transformation and innovation in patient-centric initiatives
    • Seeking to understand the potential of AI in enhancing patient engagement and outcomes
  • Chief Innovation Officers
    • Leading the adoption and integration of innovative technologies, including AI, in healthcare settings
    • Interested in exploring AI's potential to improve patient care and operational efficiency
  • Healthcare Data Scientists
    • Involved in developing and deploying AI algorithms for healthcare applications
    • Keen to learn about the specific challenges and opportunities in patient engagement and education
  • Patient Experience Managers
    • Responsible for ensuring positive patient experiences and satisfaction across all touchpoints
    • Looking to leverage AI to personalize and enhance patient interactions and support
  • Healthcare AI Researchers
    • Conducting research on the application of AI in healthcare, including patient engagement and education
    • Interested in exploring real-world case studies and collaborating with industry professionals.
  • Population Health Managers
    • Focused on improving health outcomes for specific patient populations
    • Seeking to understand how AI can help identify at-risk patients and tailor engagement strategies
  • Digital Health Consultants
    • Advising healthcare organizations on the adoption and implementation of digital health solutions, including AI
    • Looking to expand their knowledge of AI applications in patient engagement and education to serve their clients better

Conference Chair

Dr. Yuri Quintana is the chief of the Division of Clinical Informatics at Beth Israel Deaconess Medical Center, an Assistant Professor of Medicine at Harvard Medical School, and the Founder of the DCI Network.

Conference Secretariat: Gyana Srivastava, Research Assistant II, Division of Clinical Informatics at Beth Israel Deaconess Medical Center

Keynotes

"e-Patient Dave" deBronkart
  • Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup

Cancer survivor Dave deBronkart, known as "e-Patient Dave," is a long-time passionate advocate for the patient’s view of healthcare and empowering patients, through both technology and changing the culture of care. A data geek before cancer, he was thrust into the headlines when he discovered garbage in his medical records, then learned he couldn’t readily review it all. Advocating in Washington for policy changes to fix that, he became known for the rallying cry “Gimme my DaM data” (data about me) and is a global keynote speaker for patient rights. He is a co-founder of the Society for Participatory Medicine, was the Mayo Clinic’s 2015 Visiting Professor in Internal Medicine, and is today avidly exploring how empowered patients are using AI in the work of getting the best possible care for their families.

Eric Perakslis, PhD
  • Chief Scientific and Data Officer, Pluto Health
  • Senior Vice President and Chief Technology Officer, IMIDomics

Eric Perakslis, PhD, is the Chief Scientific and Data Officer of Pluto Health and the Senior Vice President and Chief Technology Officer, IMIDomics. Prior to this, he was the Chief Science and Digital Officer at the Duke Clinical Research Institute. He was previously a Rubenstein Fellow at Duke University, where his work focused on collaborative efforts in data science that spanned medicine, policy, engineering, computer science, information technology, and security. Immediately prior to his arrival at Duke, Eric served as Chief Scientific Advisor at Datavant, Lecturer in the Department of Biomedical Informatics at Harvard Medical School, and Strategic Innovation Advisor to Médecins Sans Frontières.

Eric was Senior Vice President and Head of the Takeda R&D Data Science Institute, where he built an integrated institute of more than 165 multi-disciplinary data scientists serving all aspects of biopharmaceutical R&D and digital health. Prior to Takeda, Eric was the Executive Director of the Center for Biomedical Informatics and the Countway Library of Medicine, an Instructor in Pediatrics at Harvard Medical School, and a faculty member of the Children's Hospital Informatics Program at Boston Children' Hospital.

During his time at HMS, Eric focused on the approval of the Department of Biomedical Informatics as a full academic department, the development of the NIH Undiagnosed Diseases Network, industry collaborations, leading the technology efforts for multiple Ebola response programs, and building active research programs in medical product development, regulatory science, and cybersecurity.

Prior to HMS, Eric served as Chief Information Officer and Chief Scientist (Informatics) at the U.S. Food and Drug Administration. In this role, Eric authored the first IT Strategic Plan for FDA and was responsible for modernizing and enhancing the IT capabilities as well as in silico scientific capabilities at FDA.

Prior to his time at FDA, Eric was Senior Vice President of R&D Information Technology at Johnson & Johnson Pharmaceuticals R&D and member of the Corporate Office of Science and Technology. While at J&J, Eric created and open-sourced the tranSMART clinical data system, which is now being freely used by hundreds of healthcare organizations. During his 13 years at J&J, Eric also held the posts of VP R&D Informatics, VP and Chief Information Officer, Director of Research Information Technology, and Director of Drug Discovery Research. Prior to working at J&J, Eric was the Group leader of Scientific Computing at ArQule Inc.

Eric has served on the editorial board of Cancer Today magazine and as the Associate Editor for Novel Communications for the Journal of Therapeutic Innovation and Regulatory Science. Eric has also served on Science and Technology Advisory Committees and in leadership roles for the American Society of Clinical Oncology, NuMedii, Precision for Medicine, the Survivor Advisory Board at the Cancer Institute of New Jersey, the Kidney Cancer Association, OneMind4Research, and the Scientist - Survivor program of the American Association for Cancer Research. Internationally, Eric has served as the Chief Information Officer of the King Hussein Institute for Biotechnology and Cancer in Amman, Jordan.

Eric has a PhD in chemical and biochemical engineering from Drexel University. He also holds BSChE and MS degrees in chemical engineering.

Alex Jadad, MD Phil LLD

Alex Jadad is a physician, innovator, and philosopher who has revolutionized health and medicine through his pioneering work on networks of trust, eHealth and evidence-based strategies. For over 30 years his efforts have been focused on developing "high-tech and high-touch" approaches that leverage clinical research, public engagement and cutting-edge technologies like AI, alongside policy makers, heads of state, academics and leaders in the private sector. As a result he has shaped national healthcare systems, health policies and regulatory landscapes around the world.

He holds a Doctor of Philosophy degree from University of Oxford (UK), and has honorary doctorates in Arts and in Laws. He is the founder of the Centre for Digital Therapeutics in Toronto, a simulator of the future. He is the author of 12 books and hundreds of scientific publications, and the creator of the Jadad Scale, the most widely used tool to assess clinical trial quality, worldwide.

Pre-Conference Course

Leveraging AI for Patient Engagement, Education, and Outcomes in Pharma and Healthcare
One-Day Course | Boston, MA | June 26, 2024

This one-day course is designed for pharmaceutical industry professionals and hospital leaders involved in patient engagement, clinical trial recruitment, patient education, and patient-centric care delivery. Participants will learn how AI can be strategically leveraged to improve patient engagement, education, and support while addressing key challenges. The course covers personalized patient engagement strategies, AI-driven insights, ethical AI implementation, and regulatory compliance.

Who Should Attend: Patient Engagement Managers, Clinical Trial Recruitment Specialists, Patient Education Directors, Digital Health Strategists, Chief Innovation Officers, Healthcare Data Scientists, Patient Experience Managers, Healthcare AI Researchers, Population Health Managers, Digital Health Consultants

Session Topics:

  1. Introduction to AI in Patient Engagement and Education
  2. Personalized Patient Engagement and Education with AI
  3. AI-Driven Insights for Patient-Centric Clinical Trials and Care Delivery
  4. Ethical AI Implementation and Regulatory Compliance
  5. Collaborative Workshops and Future Directions

See the full course program

DCI Network Conference

The Future of Patient Engagement: Insights, Innovations, and Implementations
DCI Network Conference
Harvard University | June 27, 2024

This conference brings together patients, patient advocates, pharmaceutical industry professionals, hospital leaders, and technology experts to explore how emerging technologies can be strategically leveraged to enhance patient engagement, education, and support. Participants will learn about the latest advancements, showcase successful case studies, and discuss strategies for addressing trust, privacy, health equity, and regulatory compliance challenges.

Who Should Attend: Patients and Patient Advocates, Chief Patient Experience Officers, Patient Engagement Specialists, Digital Health Strategists, AI and Machine Learning Experts in Healthcare, Clinical Trial Managers and Coordinators, Physicians and Nurses, Healthcare Researchers, Medical Affairs Professionals, Health IT and EHR Vendors, Behavioral Economists and Social Scientists, Policymakers and Regulatory Authorities

Session Topics:

  1. Patient Perspectives on Engagement and Emerging Technologies
  2. Healthcare Provider Perspectives on Engagement and Emerging Technologies
  3. Life Sciences Perspectives on Patient Engagement and Emerging Technologies
  4. Policy, Regulatory, and Ethical Considerations for Patient Engagement and Emerging Technologies
  5. The Impact of AI and Emerging Technologies on Patient Engagement and Healthcare Delivery
  6. Innovative Approaches to Patient Engagement using AI, Social Media, and Virtual Reality

See the full conference program and videos from the conference can be viewed here.

Post-Conference Retreat

DCI Network Retreat Patient Engagement: Co-Designing the Next Generation of Interaction Medication Apps
DCI Network Retreat | Harvard University | June 28, 2024
By Invitation Only

This one-day retreat will bring together DCI network members, invited patients, patient advocates, technology innovators, and patient engagement specialists to co-design the next generation of interactive medication apps. Attendees will participate in brainstorming sessions to develop innovative engagement strategies for a new AI chatbot, evaluate the chatbot's performance and safety, and collaborate on creating cutting-edge patient engagement solutions.

Who Should Attend: DCI network members, Invited patients and patient advocates, Invited technology innovators, Invited Patient engagement specialists

Session Topics:

  1. Brainstorming Session 1: Engagement Strategies for a New AI Chatbot - Hearing the Patient Voices
  2. Brainstorming Session 2: Engagement Strategies for a New AI Chatbot - Digital Strategies
  3. Evaluation of the Chatbot: Protocol, Key Performance Metrics, and AI Safety
  4. Next Steps and Closing Remarks

See the full retreat program.

Key takeaways for participants

  1. Hearing the Patient Voice and Their Requirements:
    1. The events will provide a platform for patients and patient advocates to share their perspectives, needs, and preferences regarding the use of emerging technologies in healthcare.
    2. Attendees will gain valuable insights into how these technologies can be designed and implemented to best meet patients' needs and expectations, ensuring a truly patient-centric approach.
  2. Increased Knowledge of Technologies for patient engagement and how they interact with behavior change:
    1. Understand the behavioral models and cognitive constraints that influence patient adoption and use of health IT.
    2. Participants will gain a comprehensive understanding of the latest advancements in AI, machine learning, virtual reality, and other emerging technologies and their potential applications in enhancing patient engagement, education, and support.
    3. Attendees will learn about successful case studies and best practices in leveraging these technologies to personalize patient engagement, improve patient education, support shared decision-making, and drive positive health behaviors and outcomes.
  3. Networking with Diverse Thought Leaders:
    1. The events will foster collaboration, knowledge-sharing, and networking among a diverse group of thought leaders, including healthcare providers, pharmaceutical industry professionals, technology experts, patients, and patient advocates.
    2. Participants will have the opportunity to connect with like-minded professionals, exchange ideas, and explore potential collaborations to drive innovation and progress in patient engagement and emerging technologies.
  4. Understanding the Regulatory Landscape:
    1. Attendees will gain a deeper understanding of the regulatory landscape surrounding the use of emerging technologies in healthcare, including data privacy, security, and compliance requirements.
    2. The events will feature discussions on strategies for navigating regulatory challenges and ensuring the responsible and ethical implementation of AI and other emerging technologies in patient engagement initiatives.
  5. Identifying the Most Innovative and Engaging Approaches to Support Patients
    1. Through presentations, panel discussions, and interactive sessions, participants will discover the most innovative and engaging approaches to leveraging emerging technologies for patient support, education, and engagement.
    2. Attendees will have the opportunity to explore cutting-edge solutions, such as personalized patient engagement strategies, AI-driven chatbots, virtual reality interventions, and gamification techniques, to enhance patient outcomes and experiences.

Frequently Asked Questions (FAQ)

Q. Is there a cost to attend?
  • There are no costs to attend online.
  • There is a cost to attend in person. Register here. Spaces are very limited. We recommend interested attendees register early.
Q. Does onsite include food?
  • Breakfast and lunch will be provided at the event.
Q. Are travel costs covered?
  • Each person needs to cover their own travel.
Q. Will the event be recorded?
Q. What about other questions?

Hotels

These hotels have discounted rates for this conference.

  • Porter Square Hotel, 1924 Massachusetts Ave, Cambridge, MA 02140
    • All reservations must be made by phone 1-888-229-1615 at the front desk of the hotel. Guests wishing to receive the benefits of this group must reference DCI624 or Div Of Clinical Informatics At BIDMC upon booking. Rates are guaranteed until 06/25/2024 or until the block is full. Guaranteed rate is Petite Double Twin: $225 + tax - Petite Queen: $235 + tax - Deluxe Double Twin: $239 + tax - Deluxe Queen: $249 + tax - Queen Suite: $265 + tax)
  • Courtyard by Marriott Boston Cambridge: 777 Memorial Drive, Cambridge, Massachusetts, USA, 02139
    • Reservations can also be made by calling phone: (617) 492-7777

The following are near Harvard University. Please note that we have not reserved any block of rooms at these hotels.

Nearby with short uber ride

Lower priced - longer uber drive

Parking

Parking choices near Harvard Faculty Club at 20 Quincy St, Cambridge, MA 02138

Program Committee

The conference was organized under the guidance of our esteemed Program Committee. The names are presented in alphabetical order.

  • Paul Barr, PhD, MS, Associate Professor, Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College
  • Dave deBronkart "e-Patient Dave", Founding Co-chair, Society for Participatory Medicine and HL7 FHIR Patient Empowerment Workgroup
  • Eileen Koski, MPhil, FAMIA, Program Director, Health Data & Insights, IBM Research
  • Steven "Steve" Labkoff, MD, FACP, FACMI, FAMIA, Collaborating Scientist, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
  • Elizabeth "Betsy" Lowe, BIDMC Patient and Family Advisory Council
  • Amy Price, DPhil, Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College; BMJ Research Editor (Patient and Public Partnership)
  • Yuri Quintana, PhD, Chief, Division of Clinical Informatics, Beth Israel Deaconess Medical Center; Assistant Professor of Medicine, Harvard Medical School; Senior Scientist, Homewood Research Institute
  • Leon Rozenblit, JD, PhD, Executive Director, QED Institute; Collaborating Scientist, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
  • Gyana Srivastava, Research Assistant II, Division of Clinical Informatics, Beth Israel Deaconess Medical Center
  • Glenda Thomas, BIDMC Patient and Family Advisory Council

Collaborating Organizations

The Society for Participatory Medicine is a 501(c)(3) not-for-profit organization devoted to promoting the practice of participatory medicine, which enables collaborative communication and information sharing among patients, caregivers, and healthcare professionals.

Our Guiding Principles:

  • To guide patients and caregivers to be actively engaged in their health and health care experiences.
  • To guide health professional practices where patient experience and contribution is an integral goal of excellence.
  • To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care.

The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.

Sponsorship

Diamond Sponsor 30K

  • Logo and thanks on communications to participants
  • Logo with link on website
  • Logo on all materials at the conference
  • Acknowledgement from the podium at opening reception and closing remarks
  • "Named" lunch with large logo on screen, plus option to give remarks
  • Booth space onsite in a prominent position
  • Complimentary conference registration for up to 6 individuals

Platinum Sponsor 20K

  • Logo and thanks on communications to participants
  • Logo with link on website
  • Logo on all materials at the conference
  • Acknowledgement from the podium at opening reception
  • Booth space onsite
  • Complimentary conference registration for up to 5 individuals

Gold Sponsor 10K

  • Logo and thanks on communications to participants
  • Logo with link on website
  • Logo on all materials at the conference
  • Booth space onsite
  • Complimentary conference registration for up to 4 individuals

Silver Sponsor 5K

  • Logo and thanks on communications to participants
  • Logo with link on website
  • Logo on all materials at the conference
  • Complimentary conference registration for up to 2 individual

Bronze Sponsor 1K

  • Logo at breakfast table
  • Logo on conference program
  • Complimentary conference registration for up to 1 individual

For more information about the conference and to become a sponsor, please contact DCI: Yuri Quintana, Ph.D., Chief of Division of Clinical Informatics, Beth Israel Deaconess Medical Center (BIDMC) and Assistant Professor of Medicine at Harvard Medical School (yquintan@bidmc.harvard.edu) and Gyana Srivastava, Research Assistant II, BIDMC (gsrivast@bidmc.harvard.edu).

Host Organization

The Division of Clinical Informatics (https://research.bidmc.org/dci) at Beth Israel Deaconess Medical Center (BIDMC) is a leading center for scalable informatics research and policymaking. The DCI Network (https://www.dcinetwork.org) accelerates solutions to complex healthcare problems through multi-stakeholder alliances and strategic roadmaps, focusing on harmonizing data, improving patient engagement, and building trust in AI.

Who would benefit

  • Patients and Patient Advocates
    • Patients with chronic conditions
    • Patients participating in clinical trials
    • Patient advocacy group representatives
    • Patient support group leaders
    • Patient experience experts
  • Pharmaceutical Industry Professionals
    • Patient Engagement Managers
    • Clinical Trial Recruitment Specialists
    • Patient Education Directors
    • Medical Affairs Professionals
    • Digital Health Strategists
    • Clinical Operations Managers
    • Pharmacovigilance Specialists
    • Medical Science Liaisons
    • Market Access and Reimbursement Professionals
    • Regulatory Affairs Specialists
  • Hospital and Healthcare Leaders
    • Chief Patient Experience Officers
    • Patient Engagement Specialists
    • Physicians (Primary Care, Specialists)
    • Nurses (Registered Nurses, Nurse Practitioners, Clinical Nurse Specialists)
    • Population Health Managers
    • Care Coordinators and Case Managers
    • Quality Improvement Professionals
    • Healthcare Administrators
    • Chief Medical Officers and Chief Nursing Officers
    • Telehealth and Remote Monitoring Specialists
  • Technology Experts
    • Digital Health Strategists
    • AI and Machine Learning Experts in Healthcare
    • Health IT and EHR Vendors
    • Experts in Social Media and Virtual Reality
    • Mobile Health App Developers
    • Data Scientists and Analysts
    • Cybersecurity and Privacy Specialists
    • Interoperability and Standards Experts
    • Natural Language Processing (NLP) Specialists
    • Robotics and Automation Experts
  • Researchers and Academics
    • Healthcare Researchers
    • Behavioral Economists and Social Scientists
    • Healthcare AI Researchers
    • Biostatisticians and Epidemiologists
    • Health Informatics Professionals
    • Medical Ethicists
    • Health Policy Researchers
    • Outcomes Research Specialists
    • Social Determinants of Health Experts
    • Patient-Reported Outcomes (PRO) Researchers
  • Policymakers and Regulatory Authorities
    • FDA Representatives
    • Health Policy Experts
    • Regulatory Affairs Professionals
    • Government Agency Representatives (HHS, CMS, NIH)
    • Public Health Officials
    • Health Insurance Executives and Policymakers
    • Value-Based Care Specialists
  • Consultants and Innovators
    • Digital Health Consultants
    • Patient Experience Designers
    • Healthcare Innovation Leaders
    • Design Thinking Experts
    • User Experience (UX) Researchers
    • Service Design Professionals
    • Change Management Consultants
    • Strategy and Business Development Professionals
    • Investors and Venture Capitalists in Digital Health
  • Other Relevant Professionals
    • Medical Device Manufacturers
    • Pharmaceutical Supply Chain Managers
    • Health Economists and Outcomes Researchers
    • Patient Safety Experts
    • Risk Management Professionals
    • Quality Assurance and Compliance Officers
    • Clinical Documentation Improvement Specialists
    • Medical Writers and Communicators
    • Healthcare Journalists and Media Professionals